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Why a Bio Intro? | This intro page was added more than a year after I had posted my first two Bio Pages. When I decided to start my Website in May, 2002, I really didn't want to include that much about me. But, I started getting lots of email from people who wanted to know more about me. So I decided to add this bio section, mostly so that people could just understand me a little better. This was the first time that I've tried to put all of this into words, and it wasn't at all easy for me. On June 11, 2003, I added this introduction page, which I hope will explain some things better. |
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Introduction Page | June 11, 2003: Over the past months I have received such supportive email about these pages. Some people have said that I've been an inspiration to them and that reading about my life has helped them with their own personal problems. Many people also tell me that they are so impressed at how strong and positive I am. Well, I've really don't consider myself to be all that strong, but without my positive outlook and my strong faith, I would have likely given up a long time ago. Besides, I haven't really gotten through much of this by myself. So many wonderful people have helped me get through all this. But I'm am thrilled to know that I've been able to help others in some small way. I may be a bit unique, but I really don't consider myself to be all that special. It's just that I'm a little different from most people. Yes, things have been a little rough at times, but I don't feel that I've had it any worse than anyone else. Because everyone single person has their own problems and losses to deal with in life. It's just that mine started a little early. |
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Not the Whole Story | Everything that I have written on these few pages is all completely true, but I have left so much out. This is sort of just a little peek into my life and is all that I'm willing to publicly share right now. I haven't even tried to include my most difficult (an most personal) problems that I have to deal with. My life and what happened to me is really so much more complicated than what is written here. Believe it or not, even stuff like my age is not all that simple. So, I really doubt that most people would even believe me if I put my entire story here. And, those who did believe my story, would probably think of me as some sort of alien or something. And I wouldn't blame them at all, because, honestly, the whole thing really is totally unbelievable. Several of my doctors have told me that I really should consider writing a book about my life, but I'm not sure that I'll every be able to open up my personal life or my inner soul that much. Some of what I've had to get through has just been so incredibly difficult and is so hard to accept. |
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Being too Unique | | Even my doctors had trouble believing me at first, but now that most of them understand me, they tell me how totally unique I am and that it really is a miracle that I have even survived. My doctors cannot find another case even close to mine, even though they have contacted many experts about me. There just doesn't seem to be anyone else quite like me anywhere. Yes, I realize that every single person is unique, but apparently I'm a bit more unique than most. This isn't really a good thing, because it makes it nearly impossible to explain most of what I am going through and it has often made it really difficult for me to get the help that I need. And dealing with my health insurance company has been a real nightmare at times. The hardest part about being so unique is that it often makes me feel so completely alone. |
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Giving the Wrong Impression | Now I'm really afraid that I may have given the wrong impression here. Please understand that my life is not horrible or anything at all like that. It's just been sort of difficult at times. But I have been blessed with a really wonderful life so far and I really appreciate all that I have. And I'm actually a very happy person most of the time, so please don't feel at all sorry for me. I didn't write any of this to gain attention or for any sympathy. I really don't need that. All I want is just a little understanding.
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This Website has been online
since April 20, 2002
Designed and maintained by
~ Arwen ~
Copyright © 2008 |
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